autismwars

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I Cry Because Others Are Stupid… Autism Hearings Today

In Action, Autism, Government on 29 November 2012 at 8:19 am

[Quickly let me say, I am blogging here today because I still hate my website.  It needs so much work.  I hate it. Please anyone with WordPress on a server who knows what they are doing hit me up.

Second, because at 2 p.m. today for the first time in really too long a time, there will be Autism hearing in front of the Congressional Oversight and Reform committee.  I keep hearing it will be on C-Span 3, but not confirmed so this link is a back up for that:  Streaming here now: http://www.c-span.org/Live-Video/C-SPAN3/ Other link not working
Now, down to business:

There was a time when I would get excited over new developments in the Autism community.  A new study supporting a vaccine link... or a new study PROVING that there are MEDICAL and Metabolic underpinnings to autism... Oh! I would get so excited!! I would say, "I am one day closer to my "VINDICATED" tattoo!!  But after a while that excitement turned to apathy.  The mainstream media ignores such things.  Instead they continue to promote this idea that "that Doctor who said vaccines cause autism lost his license because he lied" (if you still believe that you are an ignorant fuck) and that autism is all about quirky kids who are great at math and can shoot baskets.  --And if you still believe that, go fuck yourself.

So these hearings are today.  I suppose I will watch.  I know there are some smart peeps testifying and they will say great things, but I am not excited.  In fact I find myself pretty pissed off this morning.  We did this 10 years ago.  We did this 12 years ago.  The only thing that has changed is that MORE kids are being diagnosed with autism.  There is an OBVIOUS environmental factor and NO ONE SEEMS TO GIVE A FLYING FUCKITY MOTHER FUCK.

FUCK ALL OF YOU who ignore me. FUCK ALL OF YOU who read my posts and think I am just some crazy woman ranting.  This is a NATIONAL FUCKING EMERGENCY, YOU DIM WITS! THIS IS THE BEGINNING OF THE END OF OUR FUCKING SPECIES YOU STUPID STUPID STUPID ASSHATS.

And I see nothing coming out of today's hearings.  Nope. Nothing.

A friend of mine posted this video this morning along with some powerful words:

She said, in part: “”628,320. SMDH

4,620 days ago today, I testified before the Congressional Committee on Oversight & Government Reform. I was concerned that the CDC was reporting 1 in 500 children had autism and the numbers were actually higher, closer to 1
in 100. I was concerned that we had an urgent public health crisis on our hands. [snip]

Turns out, as parents, we were right.  [snip]

That’s 628,320 children that have been, or will be, diagnosed with autism since that morning of April 6, 2000 in this country alone.
That’s more than the populations of Boston, Denver, Milwaukee, Washington, DC, Sacramento or even the Atlanta, where the CDC is located.

Isn’t that enough to go ahead and declare autism an urgent public health crisis then address it as such?  [snip]

I’m still mad as hell and we don’t have time to go round and round and round.” –Friend I won’t cite because she probably rather people don’t know she knows me ;)

Not a damn thing has changed.  Our youngest generation is the sacrifice for our modern lifestyle and greed. And our entire species will follow.  And our government does nothing.  I really do not understand how they don’t see this as national fucking emergency. How it is not seen as the beginning of the end of our species. How this is not important. Are they that fucking stupid???

I found a few tears dripping out of my eyes this morning after reading my friends words and watching that video.  I thought to myself, “Really?  Why are you crying??” I thought about it and that is what I realized.  It boiled down to the fact that there are so many stupid fucking sheep out there. And that makes me sad.

I will be back with more after the hearings today… and that is a threat and a promise.  I am not fucking around.

MMS –some more.

In Autism, Treatment on 10 June 2012 at 10:38 am

OK, so I finally got the website up and that is where I am updating on MMS as often as I can:

http://www.autismwars.com –look across the page listing for the MMS page.  Pretty much everything else in still under construction, but I am getting there!!

I will also be blogging there from now on.

MMS.

In Autism, Treatment on 4 June 2012 at 5:30 pm

MMS? WTF? IDK? Huh?

A few months ago I started to see some debate about MMS is the autism community –with dear friends of mine coming down on both sides of this debate.  I was left scratching my head because I had no idea what MMS even was. A quick search of the internet did not give me a good impression… “Bleach water!” That was what was in my mind as I skimmed over all the commentary out there. I was finding myself siding with those against its use. But then I remember that I was added to a group where the use of MMS was being discussed.

I logged onto the group and saw a lot of familiar names.  REALLY SUPER SMART warrior moms, whom I know would never jump in blindly on a new treatment without doing their research –add to that, they were seeing results.  I had to know more.

So I started reading more, emailing people, dusting off chemistry books –thinking and pondering so hard that smoke was pouring out of my ears. I was sent some pages by a friend, that discussed the negative aspects of MMS, referring to it as a chemotherapy.  And for the most part, I am against such things.  I believe in boosting the body’s natural ability to heal itself. I found those pages to be full of factual errors, however, so I found myself not too willing to listen to their opinion of MMS. I was directed to some YouTube videos, that frankly did not answer my questions. I was directed to some files that still did not answer my questions… But I also remembered a thought that had entered my own head over a decade ago… See, MMS is being used to treat HIV in some areas of the globe.  Ten years ago I had the same thought about similar substances… Is there something similar to bleach that could be safely taken internally that would kill HIV? –that was my thought.  I am no chemist and very ADHD, I didn’t give it much thought. Apparently, there are smart people out there who pondered it and figured it out.

Still, I was going back and forth on the issue. I downloaded Jim Humble’s book on MMS and at that point was even more turned off because he kept talking about how one can profit for making and selling the stuff… this comes up like twice in the first couple chapters/introduction of the book.  –Even though he swears he does not profit from it, that he is just getting the word out there…

At that point I kinda walked away from it all. I couldn’t decide, didn’t want to read his book anymore, hadn’t really found my answers… “I’ll pick it up later –much later”

Flash forward to the Autism One conference.  There was going to be an MMS presentation! I was not going to miss it!

Before that Presentation I seemed to have a lot of encounters that I will call sign posts along the way.  I listened to Doctors speaking of viruses and bacteria that are hiding out in the majority of our kids.  I talked to moms about yeast and parasites… a lot. I learned that one reason my child might be a “non-responder” is because ALL that good stuff I have been giving him all this time, was feeding parasites and not actually benefiting him all.  I felt like there was a giant neon arrow flashing over my head pointing me in the direction of the MMS talk… and at that talk, that is where the rest of my questions were answered… Like how it only goes after the bad stuff and not good tissue, how it is converted in the body to harmless substances within an hour and there is no build up of these substances.
My list of questions went on –and I am being vague in this blog on purpose.  This is a seriously off label treatment for CO-MORBID conditions that are sometimes present in Autism. ;) I think you all need to make this journey on you own –think of your own questions, find your own answers, do the footwork yourself so that you are comfortable trying this.

I will say this… My bottles came today, and I found myself going over the “are you sure you want to do this?” check list in my head again. (The answer is YES!)

The biggie… my take away from AO lectures, my own child’s symptoms and history, and from a conversation with a Dr in the sauna, I can’t remember his name! –If I decided to treat Gavin for all these BUGS that have invaded his body, I would be sitting here right now with a pile of pharma pills –anti-biotics, anti-fungals, anti-parasitics, anti-virals… all with known side effects… all that will wreak havoc on his body as we try to balance out the mess… Or… MMS. MMS does the same thing as all of those.  AND It is NOT bleach.  I will post some links below for you to start researching it for yourself.

Yes, I prefer natural methods –but I tried that for years, it didn’t work. Hundreds a month spent on natural products that are supposed to kill bugs, and supplements, and MB12… the whole cast of characters. None of it helped. It often left him more agitated!  I hope to someday get him to the point where all the bad stuff is dead and we can go back to trying to boost his own body to heal and protect itself… but he has been so messed up for so long… MMS for us!

I am starting on the regular dose loading schedule for myself.  For Gavin, it’s the slooooow method. I am comfortable with that.  And I will be logging and blogging every day on our progress.  For a while I will post here and on the website, which I swear is up –I just can’t find a template that I like, so bear with me :) There will be an MMS page on there by tomorrow, and I will link to it from here.

Links:

MMS Autism http://www.mmsautism.com/

The presentation at Autism One, in four parts: (note to my mother, don’t watch it… trust me ;)
part 1:  http://livestre.am/3VW8E
part 2:  http://livestre.am/3VWaQ
part 3: http://livestre.am/3VWhx
part 4: http://livestre.am/3VWn5

Those are good places to start … but do google it, and search out videos on YouTube… MMS, Jim Humble… read it all and draw your own conclusions –as I am not your doctor and this is not medical advice.

Jerry Springer’s final thought.

In Uncategorized on 27 May 2012 at 11:14 am

So, I did not have much time for blogging while here… But I do have a lot to say. About what I learned, yes… But about ALL the stuff I learned and witnessed.

Frankly, I saw too many tears shed by too many people about shit that had nothing to do with autism, but that had everything to do with people being douche-y.

I’m going to sleep on those thoughts a couple nights.

I am so glad that I got to meet so many friends that I had yet to see in person, and so glad that I got to see some friends from long long ago!

It’s been a blast. Back to real life now.

Hey, *psst* you got the stuff??

In Autism on 25 May 2012 at 4:45 pm

Autism Moms have the best shit.

I love a gathering of moms and dads who know more about supplements than anyone else on the planet.  They always bring the good shit with them too.  Picture it, just 30 minutes ago…

ME: I feel like I got hit by a truck. All my usual tricks for lack of sleep and hangover had failed.
MY Supplier: ;) Here take these!  –and suddenly in my head I am amused by what looks like a drug deal, only with legal supplements !! of course!!

“Take this shit, man! I am telling you… BAM! You’ll be full of energy again in no time!”
“Here, here is some GABA, take that shit too –you’ll be coming back begging for more!”
“That little red one there, just put it under your tongue and enjoy the ride!

;)

I am feeling great and going to go hit up a 5 p.m. session! Looking forward to SPA Night!! I bet they have good shit there!

On our way!

In Uncategorized on 24 May 2012 at 9:32 am

image

                    Eff Pharma!

So I will blog here!

In Autism on 24 May 2012 at 7:38 am

I got logged off the place where I edit my http://www.autismwars.com

And I don’t know how to log back on.. :) I am a dork.
I will try to figure it out today.

I will blog from here, and I will be updating the Facebook page :)

https://www.facebook.com/autismwars My profile.
FB Page: https://www.facebook.com/pages/Autism-Wars/174815722570376

AAAAAAAAAAAAAOOOOOOOOOOOOOOOOOO!!!!!!

In Autism, Research on 23 May 2012 at 6:54 am

Getting ready!!!

Just survived getting the kids off to school, with Gavin obsessing and Liam screaming! –Look for this girl at AO! Identifiable by coffee mug that will be in the same position prior to 11 a.m. on any given morning. How do you like those dark circles and morning hair that hasn’t seen a brush yet?? SOOO looking forward to spa night!

So… I am sitting here kinda smelling like dog poo. I love my pets!  :/ I have sooo much to do today!! CLEAN, PACK, RUN*! SHOWER! I have to tear down my son’s computer and move it to my parents house for the length of the trip so that he has something to occupy him for 5 days!
*oh, so misleading!! Run errands… LOL I … I don’t run… not anymore.  I abused my knees in my early 20′s… Wait… that sounds bad… get your mind out of the gutter, I meant I ran lot back in the day and wore them down… and… oh, forget it…

Autism One 2012 Conference starts today! I will be rolling in tomorrow evening.
Here is the schedule of events!  Today includes culinary day, among other things. Starting or wanting to start your child on a special diet? Be sure to tune in!

You can watch the live stream HERE!
–I am thinking at some point there will be different channels for the different rooms, but right now I cannot see that.
The page does say that there will be “watch video” links pop up on that schedule as they are streaming –and this year the content will be left up FOR A YEAR, so you have time to watch EVERYTHING!

And yes, !!!!!!!!!!!!!!!!! I am using a lot of exclamation marks. I am excited. dammit.

;)

I am still taking donations to help cover the costs if you are so inclined and able.

http://widget.chipin.com/widget/id/bb85b44e9a0c577d

A Quicky.

In Autism Wars on 16 May 2012 at 10:32 pm

Image

Hey, quickies serve a purpose too!

So I am lazy tonight, using my laptop with the broken keyboard, which means I have to use the On-Screen keyboard for all the broken keys… in the time it took to type that I could have got up, got my keyboard and plugged it in. Meh.
Witout it my typin looks like tis ;)

SO… WTF, Jenny. Get to the point.

Autism One is quickly approaching! I AM GOING.  Hit me up!
I know I have been saying, for a year now, that the website is coming….WELL… the URL is up on a server now!! In the next couple days I am going to toss up a cheesy version of a real webpage, with lots of info on AO (They will be live streaming again this year!)

AND we will be live blogging –from the road, from the conference, and I am sure I will toss up some scandalous and/or hilarious after hours pics too ;)

I swear this to you, autismwars.com will be up SOON!

Can’t wait to see you all!

Hey, Fatty, There’s a Pill For That!

In Diet on 15 May 2012 at 1:34 pm

I am giving up nap time to write this blog today…I hope at least one person listens.

What a country!! #firstworldproblems

“It is not very impressive, the weight loss, but it is better than a placebo,” said Michael Aziz, an internist at Lenox Hill Hospital in New York City.
“However, when people stop the drug they gain the weight back.”  US Panel gives nod to new obesity drug. I am sure it is free of side effects too, eh? We’ve never had a diet pill in this country that killed people, right?? *FACEPALM*

I am getting on my soap box today –how is that different than any given day?? I guess it isn’t really autism related… Well… I am sure I can connect it somehow, that is my super power… ADHD-off-the-rails-wild-trains of thought :)
DISCLAIMER: I am no example of health, I am an example of someone who got far out of bounds and is trying to fix it.  I know struggle… now read on and let me preach to you!

I just saw the above article in my Facebook news feed.  It brought back memories of my “Stop fucking cheeseburgers” rant –which was brought on by an article I read about chewable cholesterol meds for tots! Stop the fucking insanity. Since that time, last year, I still don’t understand why people still defend their food like they are romantically involved. For me, it’s been an on-again, off-again relationship. I have lost 50 pounds… I have 3,719 more to go, however.

Look peeps… it is so fucking simple at it’s core.
–but getting to the core can be complicated.

Homo Sapiens have been here for about 200,000 years… We roamed around eating off the land.  Shit be growin’ off trees and bushes.  We ate it.  Shit be roaming around and if we killed it before it killed us… We ate it. We needed about 5,000 calories a day because we burned it all off looking for food. (OK that might be the neanderthal numbers –don’t expect me to remember everything from college, but you get the point… we burned what we ate, we ate what we burned.  And we ate real food). It was the perfect food for us because we evolved along with it, right?? I don’t need to explain that right? If it was bad food we never would have made it this far… we would have… oh.. I don’t know… all got fat and died from disease and never made it out of caves.  Got it?? Getting it??

In the movie Food Inc they point out that food has changed more in the last 50 years than since the dawn of humanity. Think about that.
Now think about the diseases we have today that you never really saw fifty years ago. Our food changed too fast.  We are now roaming the land in desk chairs plucking Twinkies off the trees… At a time when we needed to change our eating habits to consist of FEWER calories because we were moving less, we created foods that are HIGH in energy, in small portions, topped off with chemical compounds to keep them shelf stable for years. So we eat these things… and what happens?  Well, they aren’t real food… so we are still starving for proper nutrition. It was small…. a “energy bar” perhaps, it was also full of refined sugar which causes your blood sugar to spike and then crash… you’re hungry 30 minutes later… you eat more garbage… the cycle continues.  The toxins and chemicals in the bad food-like-substances set up camp in your fat cells too, making it even harder to lose the weight you are putting on by eating that crap –and then releasing those toxins when you do lose weight, making you feel sick and adding to the vicious cycle.

I tried….

I tried diets. I tried counting calories. It doesn’t work. Study after study after clinical proof shows that they are short lived and you gain back more in the end.  YOU MUST get it in your head that it is not a “diet” by popular cultures definition. You have to realize that this pile of shit that you are told is “fine in moderation” can, in no way, be moderated when you are eating a diet of processed foods. It has been said a million times by a million people, you need to reframe your ideas about what you fuel your body with –”you are what you eat”, “garbage in, garbage out”… it has to be a lifestyle change and new way of looking at it.

My generation was the first to really have mostly processed foods served for lunch and dinner… We didn’t walk home for lunch during the school day like our parents and grandparents did –we ate the processed foods in the cafeteria.  Our parents were not cooking food from scratch for dinner, not with all the fantastic new options at the Supermarket!! Not like our grandparents did.  Most of our veggies came from BPA lined cans.  The victory gardens were long grown over.  Fish sticks and mac and cheese were cheap and quick. We learned some seriously bad habits in this age of convenience and progress!

I read…

I was pondering this one day –all the different diets out there. I decided to read up on all of them.
Let me save you a million hours and a few dollars… THEY ALL BOIL DOWN TO ONE THING (the good ones, not the fad ones)
EAT REAL FOOD. Eat what the first Homo Sapiens were eating because 199,950 years of evolution CANNOT be wrong.
–and since I have been asked a lot “What are you doing?” I am going to tell you right here.

I am doing… (there is cheating and I will explain that at the end)

1. No more junk food.  That is easy right?  No more artificial anything. It is the easiest way to start.
Cut out artificial colors, flavors, sweeteners, etc and you just threw out the whole middle of the grocery store and 95% of the shit in your cupboards. Now, you have “processed” options… organic, gluten free, yadda yadda, expensive options. EXPENSIVE options.  Save your money and just don’t eat that stuff anymore… I splurged at the grocery store this week and bought a $5.70 loaf of gluten free bread.  I had a sandwich.  I feel naughty.

2. Whole foods only. No more bread folks… For me I went gluten free because all signs point to me having a gluten problem. (Auto-immune disease, seizure, chronic inflammation).  But since I was doing this for weight loss as well, I took it a step further and made mine a grain free diet.  If you chose to eat grains, do it SPARINGLY.  Eat wild rice, Quinoa, limit starchy crap like potatoes and corn (those are NOT vegetables, people!)

3. CROWD OUT THE BAD WITH GOOD. Twice a day I eat ginormous salads –with avocado and olive oil!!! fatty fatty bad for you!!!! NOT NOT NOT NOT NOT.  Our brains NEED GOOD FATS.  EAT avocados!! eat olive oil!! eat Salmon!!!!!!!!!!!!!!!!! (please research fish and mercury, ok? Be careful about eating local fish you caught, in most of western PA you should not eat more than one wild fish caught every two weeks, especially down near Pittsburgh –just do your research).  Your brain needs the fat and it makes you feel full. I even enjoy a little bacon and cheese on my salads.  (Yeah, I am still not off the morphine… I mean cheese… :) ) When you eat two huge salads a day you are full, trust me.  Put whatever you want on it. Go fucking crazy… just not croutons or other processed carbs.

–THIS IS NOT A LOW CARB DIET.  It is a NO processed carbs diet. Go crazy on carbs from veggies. EAT MORE RAW THAN COOKED. JUICE THE HELL OUT OF THEM TOO. Have 1 to 2 glasses of fresh veggie juice a day (from your own juicer, not V8)
Go organic when you can, use this as a budget friendly guide.

4. Watch your sugar intake. If you cut out all processed foods, don’t worry about this… but if you are still sneaking some in there, keep your sugar gram count LOW.  The Belly Fat diet suggests no more than 15 grams a day.  If you are doing this to lose weight, stick to that. (It is damn hard, go look at the sugar content on a cup of yogurt in your fridge…. I’ll wait…. Crazy, right???
Look for sweeteners that are natural and do not raise your blood sugar.  I like Xylitol, but I need to special order it and I never remember too.  So I use agave syrup… IN MODERATION… a small amount in my coffee tastes like real sugar without the blood sugar jump –get organic.
Stevia tastes fucking nasty, I can’t do it.

Fruit is ok in moderation, I will have 1-2 pieces a day. I love my bedtime grapefruit and coffee, which guarantees that I won’t sleep through the alarm in the morning! ;)

5. You don’t need to count calories except on cheat days!
Of course I fucking cheat… it is why I have only lost 50 pounds so far!
Guess what?? I feel like shit when I cheat.  Ask yourself if it is worth it. (Sesame Chicken with all it’s MSG is sooo worth it, I do that drug about twice a year :)
On days I cheat I count calories. I keep it at 1200, not counting the fresh, raw, veggie juice.
Cheating is not an excuse to cheat all day, “I had a doughnut for breakfast, I might as well eat crap all day!!” NOPE, NO WAY.

It is that mother fucking simple. YOU DON’T NEED THOSE WHORE’S PILLS!!!
Grain free, with occasional whole grains like quinoa (if I am really jonesing, gluten free pasta)
REAL food that hasn’t been processed at all.
Crap ton of unlimited raw veggies.
Good fats –avocado, nuts, olive oil, coconut oil.
Lean meat. –fuck, have bacon and eggs for breakfast… it won’t kill you, but the toast will ;)

This is not a diet.  I never feel like I am starving. It has become habit now. It has becomes easy.

Sometimes it is not that simple
For kids with autism and seizures and other metabolic shit going on, a lot of tweaking is needed… Nap time is almost over, so later I will compile a list of special diet links.  A lot of my peeps ought to be on low glutamate diets.  For example, MSG is not a good idea on cheat days (makes me sick for days, and gives me more seizures)… There is a ton of info out there, google google google.

OH!! Autism Connection!! *giggle*  Here it is…

It’s not just food…
Want to know why we will never find the exact cause of autism and why they can’t tease it out??
Because we cannot tease it out… Plastics, chemicals, food, toxins in the air, water, PILLS, hyper-vaccination… We are throwing so much shit at the human species that it is the sum of all the shit together that is causing 1 in 6 of our offspring to have a learning disability.  1 in 88 with a developmental disorder (from birth cohort 2000 –you know it is more now).  We have begun the extinction of our species.  Watch the movie “The Disappearing Male” –learn about how sperm count is so fucking low now that they keep lowering the standards of what is considered a fertile male.  Learn how less boys are being born over all.  It is starting. We need to fix it globally if you all want to be around another 200,000 years.  I truly believe that will not be the case.  And I am perfectly fine with that.  But in the meantime you have so many options for living a healthier life for yourself and your family RIGHT NOW.

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